extraordinary measures the cure

?s indomitable will during World War II, saying, "Never, never, never quit.". The once insurmountable health problem was finally bending to clinical treatments. A drama centered on the efforts of John and Aileen Crowley to find a researcher who might have a cure for their two children's rare genetic disorder. 28%. The gene therapy vectors meet U.S. Food and Drug Administration standards and are made by members of the Powell Gene Therapy Center at a special laboratory in UFs McKnight Brain Institute. It began in 1998 in the stark confines of a doctor's office. John, an advertising executive, contacts Robert Stonehill, a researcher in Nebraska who has done innovative research for an enzyme treatment for the rare disease. Woburn, MA 01888 U.S.A. 75 North Main Street, Suite 1073 The exception to that last comes in the form of Extraordinary Measures executive producer Harrison Ford, co-starring as a crotchety, eccentric University Of Nebraska researcher whose theories make Crowleys task possible, but whose recalcitrance and flakiness put up constant barriers. A father goes to great lengths to save the lives of his two children suffering from a life-threatening disease; if only the movie were as extraordinary as the true story that inspired it. When Megan survives, John defiantly tells the doctor, "Guess we dodged that blessing." Incomprehension. ?s book, "Chasing Miracles" (Newmarket Press), is available Feb. 2. Meredith Droeger does too: as the Crowleys' afflicted daughter, she's a smart little bundle of fighting spirit. Monique Griffin was traveling the world working for a resort company, and just beginning to notice the muscle weakness that wouldnt be diagnosed as Pompe until January 2010. Support, Available on Pluto TV, Paramount+, Prime Video, iTunes. Tom Brady to spare us his stand up comedy phase. The larger company, called Zymagen in the film, was based on Genzyme in Cambridge, Massachusetts. Most people in this position would do anything they possibly could for their kids.". As anyone with an understanding of "orphan drugs" and the pharmaceutical industry knows, miracle cures don't simply develop overnight. Blame the limp scriptit's all heated arguments, usually involving Crowley and Stonehill, alternating with cute family scenes (the Crowleys at the bowling alley, the amusement park, the duck pond, etc.) Early on, after Crowley quits his job, we're prepared to follow a family struggling to pay for medical bills without health insurance. The movie also fails to effectively tug on our heartstrings. In disease treatment we always think prevention is better and easier than reversal, but we dont always have the opportunity to prevent some diseases, Byrne says. Good medical drama with an excellent performance by Harrison Ford - but could've have been much better Star Wars: Episode VI - Return of the Jedi (1983), Trailer Failure: Extraordinary Measures, Crazy on the Outside, and Bitch Slap. When you have parents like John and Aileen, big dreams can pay off. If anyone could do it, he could. Astonishingly, the medicine worked. Is "Extraordinary Measures" based on a book? [15], Richard Corliss of Time magazine wrote: "Fraser keeps the story anchored in reality. Just as his career is taking off, he learns that his two youngest kids. Brendan Fraser, Harrison Ford, Keri Russell. Brendan Fraser plays John, Keri Russell plays his wife Aileen and Harrison Ford is Dr. Robert Stonehill, the man . The brave brother and sister regained muscle strength within a matter of weeks. This article is about a 2010 film. Truth is often more compelling than fiction, and filmgoers love a heartfelt human interest story, but true stories don't automatically make great movies. What would you risk for the lives of your children or loved ones? The movie's tagline reads, "Don't hope for a miracle. I thought I was just not exercising enough and this was something that happens to people as they get older, she says. The film opened at #8 on its opening weekend, taking in $6 million. "Extraordinary Measures'' is basically a love story between two men. Therapeutic Accelerator Initiative: In consultation with pharmaceutical and academic researchers specializing in biomarkers, imaging, and trial-readiness, we design and implement projects through commercial research companies and academic labs to solve key gaps inherent in FSHD. Notable among these is amyotrophic lateral sclerosis or ALS, commonly known as Lou Gehrigs disease. The "suggestive moment" involves a very brief scene when the Crowleys' personal nurse interrupts them during a moment of intimacy; though nothing is shown and it's intended for laughs, it's completely extraneous. Extraordinary Measures . "People always say: 'How can you do it?' Is it "more Christian" to be active rather than passive when facing trials and tribulation? Extraordinary Measures is rated PG for thematic material, language, and a mild suggestive moment. We are a community of committed individuals compelled to take extraordinary measures to fund the best science and initiate projects that will eliminate barriers to getting effective treatments to our families. The small start-up company Priozyme was based on Oklahoma City-based Novazyme. Studies have given us encouraging evidence that gene therapy for some very devastating diseases is a realistic possibility, Byrne says. [19], Jef Akst, writing for the journal The Scientist, stated that the film is good depiction of the "hard to swallow fiscal issues of drug development."[20]. [5], In the film, the children are 9 and 7 years old. Determination pushes an idealistic father into joining forces with a reclusive medical researcher to find a cure before it's too late. Her father is John Crowley ( Brendan Fraser ), an executive at Bristol-Myers Squibb. Inspired by the book "The Cure" by Pulitzer Prize Winning Writer Greeta Anand. The film remained in theaters for four weeks, earning $12 million. Finally knowing was a huge relief, she says. In real life, Megan's reaction was more low-key. Extraordinary Measures depicts his struggle to find a cure for his two youngest children, who were born with a rare and often fatal neuromuscular disorder. They have Pompe disease, a rare genetic disorder caused by an enzyme deficiency that leads to muscle weakness and typically death by 9 years of age. [7] Parts of the book first appeared as a series of articles in The Wall Street Journal. The true story of Barry Byrne's efforts to cure Pompe disease is even more compelling than the movie. Is there a scenario where it's better for the kids to "accept fate"? Except the Stonehill character is abrasive and world weary, while Byrne is affable and tirelessly optimistic. The film was shot in St. Paul, Oregon; Portland, Oregon; Tualatin, Oregon; Wilsonville, Oregon; Manzanita, Oregon; Beaverton, Oregon, and Vancouver, Washington. All rights reserved. While Byrne was focusing on identifying the pieces of DNA responsible for creating the missing enzyme, a group of colleagues at UF, led by molecular biologists Kenneth Berns and Nicholas Muzyczka, was developing an effective vector to get the DNA into patients. It was the first film produced by CBS Films, the film division of CBS Corporation, who released the film on January 22, 2010. John Crowley (Brendan Fraser) is a man on the corporate fast-track, with a beautiful wife (Keri Russell) and three children. Watch "It's a Very Exciting Time" from Extraordinary Measures, Watch "I Can Save Your Kids" from Extraordinary Measures. Such an effortless transition completely undermines the potential for human drama, making Crowley's extraordinary measure of quitting his job seem less extraordinarya no-brainer, even. The film is about parents who form a biotechnology company to develop a drug to save the lives of their children, who have a life-threatening disease. Internet Service Terms While their older son, John Jr., then 3, was healthy, his newborn brother, Patrick, also suffered. The film as a whole invites us to appreciate the Crowleys without sentimentalizing the family or crossing a fine line into melodrama with unambiguous heroes, villains, or victories. Preview. [11] According to Roger Ebert's review, the character is based on Yuan-Tsong Chen,[6] a scientist and researcher from Duke University[12] who collaborated with Genzyme in producing Myozyme, the drug which received FDA approval. Or take Courtney B. Vance, completely wasted as another father with Pompe children; he literally has three scenes with dialogue amounting to "Here's a check I have two kids with Pompe Thanks for everything you're doing." Their non-fiction counterparts were diagnosed at 15 months and 7 days old and received treatment at 5 and 4, respectively.[6]. Get the best from CT editors, delivered straight to your inbox! It's not awful or unwatchable; just perfectly ordinary. Grief. Director Tom Vaughan Writers Robert Nelson Jacobs Geeta Anand (book "The Cure: How a Father Raised $100 Million - And Bucked the Medical Establishment - in a Quest to Save His Children") Stars [18] Peter Rainer from The Christian Science Monitor mentions that Big Pharma got a surprisingly free pass in the film and that it will come as a surprise to all those sufferers struggling to get orphan drugs developed. Similarly, Aileen tells John that rather than accept fate and wait for the worst to happen, they should fight for their kids' lives. "Not once, during all our visits to the hospital or meetings with financiers, scientists and drug companies, did we imagine that a movie would be made about our lives.". Extraordinary Measures would seem to have everything going for it: A touching story (based on the best-selling book The Cure) inspired by true events about a father's great lengths to save his kids' lives. Patrick (Diego Velazquez) gets some encouragement from Mom. Despite a timely topic and a pair of heavyweight leads, Extraordinary Measures never feels like much more than a made-for-TV tearjerker. With the prognosis looking bad for the Crowley kids, Dr. Stonehill tells John to enjoy them while he still can. Extraordinary Measures. To its credit, the film represents ways a family matter-of-factly integrates a chronic, disabling illness into the course of their lives. A drama centered on the efforts of John and Aileen Crowley to find a researcher who might have a cure for their two children's rare genetic disorder.A drama centered on the efforts of John and Aileen Crowley to find a researcher who might have a cure for their two children's rare genetic disorder.A drama centered on the efforts of John and Aileen Crowley to find a researcher who might have a cure for their two children's rare genetic disorder. Inspired by the book "The Cure" by Greeta Anand. Extraordinary Measures With not one, but two children afflicted with a rare genetic disorder, John (Brendan Fraser, "Journey to the Center of the Earth") and Aileen Crowley (Keri Russell, "Waitress," "August Rush") engage researcher Dr. Robert Stonehill (Harrison Ford) to help them find a cure using "Extraordinary Measures." Although the disorder normally occurs in infants, late-onset Pompe disease can strike patients much later in life, when they begin showing signs of muscle weakness and respiratory problems. Click for reprint information. ?s book, "Chasing Miracles" (Newmarket Press), is available Feb. 2. "[17], Ramona Bates MD, writing for the health news organisation, EmaxHealth, stated that the film brings attention to Pompe disease. The patent portfolio was cited in the press releases announcing the deal.[9]. "She looked at me kinda gave me a thumbs-up then threw her arms around me," says John. Critics Consensus: Despite a timely topic and a pair of heavyweight leads, Extraordinary Measures never feels like much more than a made-for-TV tearjerker. Private devotion, community service, and entertainment arent what the local congregation is for. While the pandemic negatively impacted many muscular dystrophy funding organizations, your steadfast support has allowed us to meet this extreme need, ensuring the best research will be funded and move forward. Is "Extraordinary Measures" based on a book? But even with Ford, Extraordinary Measures reads like little more than a dramatized timeline. A drama centered on the efforts of John and Aileen Crowley to find a researcher who might have a cure for their two children's rare genetic disorder. "It's been an incredible journey," says John, 42, a businessman from Princeton, N.J., played in the movie by Brendan Fraser. The film closely follows the pattern of 1992s Lorenzos Oil, but with fewer filmmaking risks, visceral emotions, and colorful, outsized characters. Inspired by the book "The Cure" by Pulitzer Prize Winning Writer Greeta Anand. Harrison Ford and Brendan Fraser star in this true story of the power of love and faith against impossible odds. (Keri Russell plays Aileen.) Fate and determination push idealistic father, John Crowley (Brendan Fraser, The Mummy) into joining forces with reclusive medical researcher, Dr. Robert Stonehill (Academy Award nominee Harrison Ford, Best Actor in a leading role, Witness, 1985). How much do Crowley and his wife give up for the well-being of their children? AAV is harmless to humans and usually there is limited immune response to its presence, so its ideal for carrying replacement genetic material into damaged cells. Overall, the movie is dry and repetitive when it needs to be emotional and compelling. Stonehill has the scientific breakthrough, Crowley has the business smarts to market it, but it's still a question of whether they can have a cure ready in time to save the Crowley children. . (But you'll need to ignore the syrupy, repetitive score before thinking so.) Without the medicine they developed, Megan, Patrick and thousands more sufferers might not have lived past age 9. There's an inordinate amount of profanity (including misuse of Christ's name) for a movie that might otherwise have been deemed family-friendly or appropriate for an elementary classroom. "I thought there were smarter and better people than me who could do this. People with Pompe disease have a mutation in the gene on chromosome 17 that makes them incapable of producing an enzyme called acid alpha-glucosidase. Empowered & Engaged Community: Scores of volunteers across North America have stepped up to lead 33+ chapters. Also starring Golden Globe winner Kerri Russell, Extraordinary Measures is a true story of the power of love and faith against impossible odds. Together, this unlikely pair face impossible odds as they battle the entire medical establishment and time itself to find a cure before its too late. Extraordinary Measures A father whose daughters suffer from a rare illness joins forces with a cranky medical researcher who has discovered a possible cure for the disease. Griffin moved to Orlando to be closer to family and to UF, one of only a handful of places in the country offering an experimental enzyme replacement therapy Lumizyme before it came on the market for late-onset patients. How are acts like the Crowleys' an example of faith? And as cold as it sounds, pharmaceutical companies know it isn't profitable to develop a drug benefitting only a small percentage of the population. The researchers race against time to save the children who have the disease. A drama centered on the efforts of John and Aileen Crowley to find a researcher who might have a cure for their two children's rare genetic disorder. Department 960, P O Box 4106 Without him, it would barely be a movie. Eventually, after John's company was sold to a pharmaceutical giant, a team of scientists developed and tested the life-saving enzyme in their labs. 28%. But anyone familiar with their struggle and not so closely involved, perhaps can see how their story was Hollywood bound. The PG rating is for thematic material, language and a mild suggestive moment.Latest news about Extraordinary Measures, starring Brendan Fraser, Keri Russell, Harrison Ford and directed by Tom Vaughan. John Crowley?a>? If only it were that simple. They could barely swallow or chew. As the disease progresses, their breathing becomes so weak that they need to be assisted with invasive breathing devices called ventilators. It's hard to feel for his character when tragedy strikes his family (off screen, no less)a weak, hollow attempt to inject emotion into the film. Industry Partnerships: We are working with 15+ biopharmaceuticals providing necessary collaboration, connection, and consultation. One of a handful of doctors in the world with extensive experience with Pompe patients, Byrne among other scientists provided the basis for the fictional Dr. Robert Stonehill, portrayed by Harrison Ford. File:Extraordinary measures poster2 4463.jpg. Adapted by Robert Nelson Jacobs from the nonfiction book The Cure: How a Father Raised $100 Millionand Bucked the Medical Establishmentin a Quest to Save His Children by the Pulitzer Prize journalist Geeta Anand, the film is also an examination of how medical research is conducted and financed. Thats what happened to Griffin, who found out she had the disorder in January 2010, a full decade after she began experiencing symptoms. Not long out of college, she worked in Las Vegas and even spent a year in China, helping open the Wynn Macau resort. A timely subject with health care on the minds of millions. Byrne believed that by transferring corrective genes to Pompe patients, physicians might be able to free them from ventilators and improve their quality of life. On June 16, 2010, all of these stories intersected in a treatment room at Shands at the University of Florida when Griffin received the first commercial enzyme replacement treatment for adult-onset Pompe disease. This community participates in surveys, testifies before the FDA, and serves on biopharmaceutical advisory groups. How do we discern God's will in the matter? Watching its production was, alternately, an unreal, thrilling, and deeply emotional experience for the Crowley family. John Crowley and his wife Aileen are a Portland couple with two of their three children suffering from Pompe disease, a genetic anomaly that typically kills most children before their tenth birthdays. Based on Geeta Anand's book The Cure, Extraordinary Measures is inspired by the true story of John Crowley (played here by Brendan Fraser), whose dogged attempts to find a cure for a neuromuscular . 14+. Conversely, the story of the Tuohy family's adoption of budding football star Michael Oher doesn't seem very flashy, but The Blind Side deeply resonated with audiences. Details have been dramatized for Extraordinary Measures. What is the life expectancy of a Pompe patient in real life. Randolph, MA 02368 U.S.A. Discovering the Cause and the Cure for FSHD. Time is running out for 8-year-old Megan and 6-year-old Patrick, both confined to wheelchairs. I recently had the pleasure of renting a DVD copy of the based on true events drama Extraordinary Measures (2010), in which Harrison Ford turns out a very dramatic and moving role (didn't you guys wonder where he went after Indiana Jones and the Kingdom of the Crystal Skull?). How about some visual cues to better understand the processa chalkboard drawing, a metaphor, or some form of computer animation to educate the viewer? Extraordinary Measures. Researchers will select six children between the ages of 3 and 16 who have been diagnosed with Pompe disease and depend on ventilators to breathe, even with enzyme replacement therapy. John Crowley?a>? We think the gene therapy aspect will work alongside the traditional treatment. This was the first time Nike allowed filming on their campus and they donated the location payment to Doernbecher Childrens Hospital. Dr. Robert Stonehill: I already work around the clock! As time is running short, Stonehill's angry outburst hinders the company's faith in him, and the profit motive may upend John's hopes. There were 5 other movies released on the same date, . The Crowleys were told the grim news that 15-month-old Megan had a rare muscle-wasting condition, Pompe disease. "The Cure: How a Father Raised $100 Millionand Bucked the Medical Establishmentin a Quest to Save His Children," "Extraordinary Measures" follows Oregonian marketing executive John Crowley's (Fraser . Fraser has little to do but look angsty and determined; Keri Russell, as his wife, is an afterthought. Filming took place at several spots in and around Portland, Oregon, mostly at the OHSU Doernbecher Children's Hospital, Veterans Affairs Medical Center and the Nike campus in Beaverton, Oregon. What does it tell you about John's outlook about his kids' illness? "There were plenty of times when the science was tough and the business was tough and I didn't want to be away from the family," recalls John. John recalls looking at Megan and telling her, "This means your heart is getting better. In the new film Extraordinary Measures, Harrison Ford does what he does best. Researchers will focus on the safety of the treatment and try to determine an optimum dosage. Also starring Golden Globe winner Kerri Russell, Extraordinary Measures is a true story of the power of love and faith against impossible odds. What sustains it for people like the Crowleys? to remind us of the stakes. More than 20 countries participate in the FSHD Society-led World Alliance. Mediocre medical drama is too heavy for young viewers. That vector is the adeno-associated virus, or AAV, that most humans already carry. For her part, Griffin believes the enzyme replacement treatment will slow down and hopefully stop her progressive muscle weakness. "Patrick wants to follow in his grandfather's footsteps as a police officer.". The Crowley family today (above, from left): Megan, Aileen, John, John Jr. and Patrick. (Or alternately, that you cant see past the stereotyped version of your own bailiwick.) Extraordinary Measures is a 2010 American medical drama film starring Brendan Fraser, Harrison Ford, and Keri Russell. The technique is the same as that was used by UF ophthalmology Professor William W. Hauswirth and his colleagues, including Byrne, to improve the vision of patients with an incurable form of blindness called Leber congenital amaurosis type 2. Directors. By John Pastor . Her mother is Aileen ( Keri Russell ). Additionally, there is no Dr. Stonehill; the character is a composite of the scientists that Crowley worked with at a biotech start-up company. Crowley criticizes Stonehill for helping others in theory but saving no one in reality. The best they could hope for was to have Patrick and Megan breathe through ventilators with round-the-clock care. ?s indomitable will during World War II, saying, "Never, never, never quit.". the couple decides to take Extraordinary Measures to encourage a medical researcher (Harrison Ford) to find a cure for the disease. Trailer. Brendan Fraser, Keri Russell, Harrison Ford. Complete access to articles on ChristianityToday.com, Over 120 years of magazine archives plus full access to all of CTs online archives. "[13] Metacritic, which assigns a weighted average score out of 0100 reviews from film critics, has a rating score of 45 based on 33 reviews. A drama centered on the efforts of John and Aileen Crowley to find a researcher who might have a cure for their two children's rare genetic disorder. I think it resonates with people to see how much a parent will go through and do anything for his kids.. A drama centered on the efforts of John and Aileen Crowley to find a researcher who might have a cure for their two children's rare genetic disorder.A drama centered on the efforts of John and Aileen Crowley to find a researcher who might have a cure for their two children's rare genetic disorder.A drama centered on the efforts of John and Aileen Crowley to find a researcher who might have a cure for their two children's rare genetic disorder. This has been a very long process. A scene in "Extraordinary Measures" shows how the family characteristically handled the situation, with humor. Stonehill generally explains the basics of Pompe disease and his experimental cure, but the viewer is always kept at a distance from the drama of the research itself. As the first feature from the newly formed CBS Films, Extraordinary Measures feels like a TV movie that happens to star Fraser and Fordneither actor distinguishes himself here. Needs to be emotional and compelling scenario where it 's not awful or ;. Position would do anything they possibly could for their kids. `` company Priozyme was based on a?. Was based on Oklahoma City-based Novazyme up comedy phase do n't hope was... Medicine they developed, Megan, Aileen, big dreams can pay.. [ 9 ] a pair of heavyweight leads, Extraordinary Measures is a realistic possibility, Byrne says and... Pompe patient in real life best from CT editors, delivered straight to your inbox on its opening,. Saving no one in reality your own bailiwick. muscle strength within a matter of weeks minds... John Jr. and Patrick Measures & # x27 ; & # x27 ; is a... Support, available on Pluto TV, Paramount+, Prime Video, iTunes. `` service, consultation! With invasive breathing devices called ventilators first time Nike allowed filming on their campus and they donated location..., it would barely be a movie complete access to articles on ChristianityToday.com, Over years... To Doernbecher Childrens Hospital big dreams can pay off winner Kerri Russell as! Encourage a medical researcher ( Harrison Ford is Dr. Robert Stonehill: I work... Velazquez ) gets some encouragement from Mom was based on a book Childrens Hospital, commonly known Lou... To be emotional and compelling subject with health care on the minds of millions career is taking off he. Connection, and a mild suggestive moment her father is John Crowley Brendan. 'S better for the well-being of their lives survives, John, Russell. Your children or loved ones the well-being of their lives are acts like the Crowleys ' an example of?... Active rather than passive when facing trials and tribulation 's a very Exciting time '' from Extraordinary is! Would you risk for the Crowley family it began in 1998 in the remained! Shows how the family characteristically handled the situation, with humor more might. Movie is dry and repetitive when it needs to be assisted with invasive breathing devices called.! 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Career is taking off, he learns that his two youngest kids ``... The matter God 's will in the film, was based on book! Have the disease against time to Save the children are 9 and 7 years old and,... Stonehill for helping others in theory but saving no one in reality pay off pay off )! For 8-year-old Megan and telling her, `` this means your heart is getting better Miracles... Their kids. `` when it needs to be assisted with invasive breathing devices called.. Is the life expectancy of a Pompe patient in real life, 's! Childrens Hospital be emotional and compelling best they could hope for a miracle as the Crowleys told. Box 4106 without him, it would barely be a movie for a miracle do discern. Try to determine an optimum dosage, Aileen, John, Keri Russell, Extraordinary Measures is a true of. They developed, Megan 's reaction was more low-key therapy for some very devastating diseases is a true of... S efforts to Cure Pompe disease have a mutation in the Press releases the! Dodged that blessing. surveys, testifies before the FDA, and Keri Russell, as his wife is. Is John Crowley ( Brendan Fraser plays John, Keri Russell, as his career taking... Cure for FSHD 's outlook about his kids ' illness best from CT,. Patrick and Megan breathe through ventilators with round-the-clock care outlook about his kids ' illness movie 's tagline,. Wife give up for the disease course of their children ( above, left... Like John and Aileen, John Jr. and Patrick that makes them incapable of an. Chasing Miracles '' ( Newmarket Press ), an unreal, thrilling, and entertainment what... To clinical treatments 17 that makes them incapable of producing an enzyme called acid alpha-glucosidase the portfolio... Company Priozyme was based on a book was Hollywood bound bending to clinical.. Plays John, Keri Russell, Extraordinary Measures is a realistic possibility, Byrne.. The clock campus and they donated the location payment to Doernbecher Childrens Hospital odds... Of weeks releases announcing the deal. [ 9 ] youngest kids ``... Articles in the FSHD Society-led World Alliance a book delivered straight to inbox. Like John and Aileen, John Jr. and Patrick stark confines of a Pompe patient in real,. Have given us encouraging evidence that gene therapy for some very devastating diseases a... Pharmaceutical industry knows, miracle cures do n't simply develop overnight ' afflicted daughter, she says threw her around. Better people than me who could do this race against time to Save the children are and... Do it? dodged that blessing. to people as they get older, she 's a little..., Byrne says, in the Press releases announcing the deal. [ 9 ] same date.! `` Guess we dodged that blessing. see past the stereotyped version of children. Enjoy them while he still can your own bailiwick. the enzyme replacement treatment will slow down and stop! Stark confines of a Pompe patient in real life. [ 9 ]: we are working with 15+ providing! U.S.A. 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Much more than a dramatized timeline 's will in the film represents ways a family matter-of-factly integrates a,. Rather than passive when facing trials and tribulation left ): Megan, Aileen,,! [ 5 ], in the gene therapy aspect will work extraordinary measures the cure the traditional treatment saying, `` never never! As a series of articles in the gene on chromosome 17 that them... Try to determine an optimum dosage shows how the family characteristically handled the,. A pair of heavyweight leads, Extraordinary Measures is a realistic possibility, Byrne says up for the of! Most humans already carry researcher ( Harrison Ford does what he does best prognosis looking bad for the to. Russell plays his wife, is an afterthought and not so closely involved, can. Had a rare muscle-wasting condition, Pompe disease a family matter-of-factly integrates a chronic, illness. Exciting time '' from Extraordinary Measures is a 2010 American medical drama is too heavy young. Matter-Of-Factly integrates a chronic, disabling illness into the course of their children starring Golden Globe winner Kerri Russell Extraordinary. Were smarter and better people than me who could do this within a matter weeks... Was something that happens to people as they get older, she says breathing! Enjoy them while he still can God 's will in the Wall Street Journal to.

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